I took Ethan into Salt Lake on Tuesday for a three hour appointment at the Autism Spectrum Clinic at the University of Utah, and they diagnosed him with Autism (most people know it as Aspergers, but apparently the scientific community is trying to get away from that title, and instead prefer to say that they register on the autism spectrum). They also think that he additionally does have ADD, but that we just need to try out other medicines (and in very small doses).
I am overwhelmed at the moment with all that we will need to teach him, but it is comforting to know that we can and will do it. Before we had hoped he would eventually pick things up on his own, with some teaching and coaching, but now we know he needs intense instruction done the correct way.
He struggles mainly in the social functioning area, so my biggest concern is bullying--from kids as well as adults. It is inevitable, and has already begun. It makes me happy to know that most adults who have worked one on one with Ethan absolutely love him--what's not to love? He is so sweet and cuddly (it is sweet and funny when he sits next to woman with long hair [so far luckily it has only been family members], leans on them and absent-mindedly plays with their hair. it often takes them by surprise), and he is happy and endearing. His laugh is so contagious.
However, there have been some adults who treat him like he is a bad kid, a nuisance, or deficient as a result of what we now know is autism. Some have even treated him like he was slow in intelligence, or mentally handicapped.
I love my sister Heather, because her response to that is the best, "you shouldn't treat anyone that way, even kids who ARE mentally handicapped". EXACTLY!! There are also kids who are starting to pick up on the strange things he does, and have begun being mean or excluding him as a result.
So, my goals are that I'm going to write down a list of everything he struggles with, and put it in order of priority.
Off the top of my head, friends and speech therapy are at the top of the list.
The psychologist told me she felt that the speech people at school needed to stop focusing on pronunciation, and work more on sentence structure and grammar--so that he can carry on conversations with adults and peers. He has come a long way in speech, however he still struggles with communicating, and most adults and peers can not understand him very well. It is very frustrating for him wanting to communicate and not being able to.
I have also decided I am going to do everything in my power to get him a group of friends, just by setting up different play dates throughout the summer. We don't have room right now in our apartment to have anyone over, but I figured we could do other things like invite several boys to go to the movies, etc.
There are so many little things that are big that go in line with just these two goals, though, like helping Ethan learn social etiquette, personal space, helping him learn adult's and kid's names, etc. (It took him until the end of the school year to tell me a couple names of kids in his class, and he still has no clue who is in church class).
I have also started doing P90X every day with him, and he loves it and has been so happy a result. I stop during every exercise and work with him with his balance and coordination, etc. because he really struggles doing basic exercises most kids can do. I plan on working at teaching him how to do sports (he has done sports, but he needs focused instruction), because I think sports offer a chance at friendship and social interaction that he needs.
At least we won't have to worry about them removing him from his IEP like they were going to do in Burley right before we left.
I will be contacting the schools to see what options we have for therapy. I'm also going to make sure his second grade teacher is the best one for him.